I will be running in my undies this February so kids like Anna can grow up happy and healthy.
Growing up in Orlinda, TN, 15-year old Anna has managed to be a straight-A student her entire life despite the challenges of having NF1. Anna has 11 brain tumors, scoliosis, and an optic pathway glioma. When she was in kindergarten she went through her first chemotherapy regiment for a year and a half and then enjoyed 4 blissfully healthy years until one of the tumors began to show cancerous active cells and began to progress. Chemo was the answer again; 6 different kinds of chemo over a four year span. Anna dealt with endless nights of throwing up, (sometimes 20/30 times) and pain that is indescribable in her bones as well as all over her body but she remained a happy, spiritual child. She would get up and go to school every chance she got. Finally the family got the news that Anna would have no more treatments for the time being.
3 months went by and they had a wonderful break from doctors and medicine. Anna went in for her MRI check-up and the results were not what the family wanted to hear: one of the tumors had doubled in size. So in September 2014 they started chemo once again. This time 4 different types at the same time.
As we run the streets of Nashville, Anna will be continuing her chemo treatments dealing with pain, vomiting, nausea and all of the other horrible side affects that accompany the treatment in an effort to stabilize this tumor. NO CHILD SHOULD HAVE TO GO THROUGH THIS.
You can help by donating or joining our team of undie-clad runners. Your donation will provide critical funding that will allow for treatments, clinical trials and ultimately will fund the research to find a cure for NF.